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Costeff Syndrome (3-methylglutaconic aciduria type III) is a rare genetic condition causing early-onset optic atrophy along with movement difficulties such as chorea and spasticity later in life. Genetic testing and specialized metabolic/neuro-ophthalmology care for this condition are essentially unavailable within Tanzania. Optic Atrophy Treatment Center works with Tanzanian families exploring stem cell therapy for the optic nerve component of Costeff Syndrome.
10+
years Experience
years Experience
5000+
Patients treated
Patients treated
100+
Countries served
Countries served
NABH
Guided facility
Guided facility
Why Tanzanian Patients Consider This Option
As an extremely rare metabolic-genetic condition, Costeff Syndrome requires specialized diagnostic testing (urine organic acid analysis, genetic testing for the OPA3 gene) that is not available within Tanzania. Families often travel abroad for both diagnostic confirmation and to explore treatment options for the optic nerve damage.
Meet The Team
Our Eye Specialists
Dr. Pawan
Associate Professor, Vitreo-Retina Surgeon. 10+ Years Experience
Retinal disorders, diabetic retinopathy, and advanced retina procedures. Provides diagnostic evaluation and treatment planning for international patients.
Dr.Pallavee
Senior Consultant Ophthalmologist & Eye Surgeon· 26+ yrs experience
Areas of Focus: Cataract surgery, corneal disorders, refractive procedures, and glaucoma management. Provides comprehensive eye care and surgical expertise for global patients.
Dr. Robin
Consultant Ophthalmologist & Eye Surgeon, MD, DO .16+ Years Experience
Areas of Focus: Cataract surgery, corneal disorders, refractive procedures, and glaucoma management. Provides comprehensive eye care and surgical expertise for global patients.
How Stem Cell Therapy May Help
Stem cell therapy is studied for its potential to help support optic nerve tissue affected by Costeff Syndrome. It addresses the vision component only — the movement-related features (chorea, spasticity) require ongoing management by a neurologist.
Is This Treatment Right for You?
Suitability depends on the stage and cause of the condition. Before travelling, our team reviews:
01 Genetic or metabolic test results (urine organic acids, OPA3 gene), if available
02 OCT scan and visual field test results
03 Age of onset of vision loss and any movement symptoms
04Current neurology management status, if applicable
What Your Visit Includes
- Remote pre-screening based on reports shared in advance
- In-person evaluation by our ophthalmology and regenerative medicine team
- Diagnostic work-up to confirm disease stage and suitability
- Stem cell therapy administered under medical supervision
- A written follow-up plan your doctor in Tanzania can continue monitoring
- Airport pickup, accommodation assistance, and a dedicated patient coordinator throughout your stay
Travelling from Tanzania — What to Expect
- Flights: Direct and one-stop flights are available from Dar es Salaam (DAR) and Kilimanjaro (JRO) to New Delhi (DEL), typically 8–11 hours depending on route and layover
- Visa: Tanzanian citizens require a Medical Visa for India, arranged through the Indian High Commission in Dar es Salaam. Our team assists with the invitation letter and required documentation.
- Cost guidance: Treatment packages are quoted in USD; approximate Tanzanian Shilling (KES) equivalents are provided on request.
- Stay duration: Most patients stay in Delhi NCR for 7–14 days, depending on diagnostic requirements and the treatment plan.
- Language: All consultations and medical reports are provided in English.
Reviews
What Our Patients Say
Deepak Kumar
From the first time we talked to the team and in all the discussions that followed, the team was really easy to talk to and explained everything clearly. They took the time to understand what was going on
Vishal
Highly trustworthy! From consultation to follow-up, the team was responsive and dedicated. Excellent facilities and patient-focused approach. the team was veey good
Frequently Asked Questions
Will this treat the movement symptoms of Costeff Syndrome?
“No, our evaluation and treatment address the optic nerve/vision component only. Movement-related symptoms should be managed by a neurologist.”
Is genetic confirmation required before travelling?
” It’s helpful if available, but not mandatory — our team can review based on clinical history and OCT/visual field findings.”
What reports should I send before travelling?
“OCT scan, visual field test, any metabolic/genetic test results, and a summary of when vision loss and movement symptoms began.”
